In this Issue:

Special Message: LSS Vice President of Community Services

When Illness Strikes, Caring Counts

Family Found After 60 Years

Missions Accomplished!
Camp Knutson Celebrates 50th Anniversary Renovated and Expanded to Serve Another 50 Years

HCLS Benefits From "Professional Volunteer"

The Council on Quality and Leadership

Leaving a Lasting Legacy

Your Chance to Sponsor A Family

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The Council on Quality and Leadership
By Phil Kuehn, LSS Director of Community Services

Lutheran Social Service of Minnesota is highly regarded for providing excellent support for individuals with developmental disabilities. The stories featured in this edition provide real life evidence of this. We are proud that our annual survey indicates a level of satisfaction with our services that exceeds national industry standards.

But we're not satisfied. We believe we can do better. And that's why we are introducing the Council on Quality and Leadership (The Council).

If you were asked the following questions, how would you respond?

  • What would you like to be when you grow up?

  • Who are you? In other words, what makes you unique as an individual?

  • List your values and/or priorities in life.

While these questions appear straightforward, providing a thoughtful and substantive response can be challenging. It is extra challenging when the same questions are asked of a person with developmental disabilities. Yet, each of us has hopes, dreams, goals, desires, preferences, likes and dislikes. Each of us … including those of us who happen to have a developmental disability.

To a certain extent, the answers to these questions lie in our ability to acknowledge that, at present, there really is a difference between "our" hopes and dreams and "their" hopes and dreams. "We" get to name our hopes and dreams …. "We" identify them … label them. In addition, "we" need to acknowledge that we all have choices and opportunities, and if we truly want to realize our dreams, then we need to act upon choices that are congruent with those goals.

It's not so simple with "their" hopes and dreams. We have to be realistic, don't we? How realistic is it for "them" to dream about accomplishing this or that, or experiencing something new? Furthermore, it just can't be right for "us" to string "them" along with unrealistic expectations.

Enter The Council on Quality and Leadership, an entity working to enhance accountability, responsiveness and quality performance in human and social service organizations. As a line of service, Home and Community Living Services has entered into a formal relationship with The Council, not so much for the purpose of becoming accredited as a provider of person-centered supports for individuals with developmental disabilities, but, more specifically, to do the right things for the people we support.

The Council has been establishing and evaluating standards of service since the mid-1960s. They have developed 25 personal outcome measures that represent the foundation for The Council's accreditation program. These personal outcomes represent opportunities to choose from options available. Again, this is a process that you and I simply take for granted and only seriously consider when they are somehow violated and/or systematically limited. We have choices. Period. Historically, individuals with developmental disabilities haven't' had choices. It's not safe to assume that members of vulnerable populations have had options.

Personal outcomes are not a measure of program efficiency or effectiveness. Rather, personal outcomes are centered on the individual and, therefore, challenge traditional models of service delivery, since these individualized outcomes often fall outside the scope of more program-based approaches. That's not to say that traditional indicators of quality such as inputs, processes, and program outcomes are not important. Personal outcomes simply focus more on the individualized impact of the outcome of these processes. In other words, the compelling question becomes something like this: Do existing mechanisms support the personal realization of an individual's hopes and dreams?

Such an emphasis on choices and options forces us to shift our attention not so much away from programmatic efficiency, but more centrally on the results of these same efficiencies. Our mechanisms need to reflect the priorities of the individuals we support. This approach presents new challenges, new ways of thinking, new ways of operating, new ways of living.

To provide an environment of person-based options means evaluating everything we have become skilled at as providers of services for individuals with developmental disabilities. Instead of asking JUST about safety, we ask how our safety measures reflect personal outcomes. Instead of JUST asking about staffing ratios, FTEs, VA's, and financial bottom lines, we must also ask how each of these items contributes to the realization of an individual's hopes and dreams. The new approach means rethinking our understanding of "our" own role in "their" lives. It means challenging the use of labels such as "ours" and "theirs" and "clients" and "consumers" so that we recognize, accept, and respect each person for the unique individuals we all are, the way all people expect certain fundamental respect.

Each LSS employee will have a role in this new endeavor. From the hands-on aspects of our direct support professionals to others in supportive or administrative functions, all will have a vital parts in assuring that these individuals have the support needed to experience a quality of life that the rest of "us" simply take for granted.

The Council will help "us" get there faster than we could by ourselves.
 

   

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